- Try to maintain a healthy weight.
- Exercise to increase muscle strength
and balance. Even if exercise does not stop disease progression, it can help “train” the body to
- Consider physical therapy.
- Consider stopping or
reducing drinking of alcohol because alcohol exacerbates symptoms of speech difficulty
Perspective: These healthy habits are good for everyone, whether affected,
at risk, or a caregiver. Apparently, it is trendy now to drink
exotic non-alcoholic drinks that are fun with the upside that
you feel well the next morning.
- Home modifications are important for safety and convenience, such
as night lights, canes, walking sticks, and walkers to prevent falling, shower mats and
safety bars or chair for shower may be helpful.
- Consider weighted eating utensils and
dressing hooks to help with eating and dressing.
- Annual or semiannual evaluation by a neurologist.
- Physical therapists can help
focus exercise on retention of muscle strength and balance.
- Some members have found exercises at this link useful: click here
- Acetazolamide may decrease episodes
- Vestibular suppressants may reduce vertigo(dizziness).
- Tremor-controlling drugs are not usually
effective in reducing cerebellar tremors.
- Driving ability should be assessed by professionals
- Ophthalmology consultation may help with refractive or surgical management of double vision.
- Prisms in glasses, or in some cases surgery, may help.
- Ampyra can help with nystagmus (extra wiggly Eye movements) and it might help with vertigo
- Speech therapy and communication devices may help with speech clarity.
- CPAP may help with sleep apnea.
- Clonopin may help with REM sleep disturbance.
- Avoid sedative hypnotics that increase incoordination.